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- DescriptionWhile it is well-kwn that the incidence of autism spectrum disorders (ASD) is skyrocketing in the general population, it's less well kwn that ASD is even more common in people with Down syndrome. This book offers a thorough examination of the unique profile of a Down Syndrome-Autism Spectrum Disorder (DS-ASD) diagsis and best practices for screening, treatment, and caretaking through the lifespan. This one-stop resource, the first of its kind, will greatly benefit families whose child is already diagsed, and also those who suspect something more than Down syndrome. Professionals, too, will find information on how to distinguish DS-ASD from a diagsis of just Down syndrome, and guidance on providing services for children and adults. The editors and chapter authors are seasoned parents, advocates, doctors, dentists, psychologists, behaviour analysts, nurses, educators, and financial planners. They share their experiences and expertise on the following topics: Diagsis; Emotional Adjustment & Support; Genetics; Medical Concerns (health problems common in Down syndrome and ASD, conditions that can be missed when ASD is t recognised -- reflux, pneumonia, hypothyroidism. When Autism is Suspected for Teens and Adults with DS (often misdiagsed as mental health problems); Making the Most of Doctor Visits (co-ordinated, team approach to care); What Autism Looks Like in a Child with Down Syndrome (comparing behaviour of kids with DS-only to that of kids with DS-ASD at different ages using case studies); Oral Health (tips & strategies to ensure co-operation during dental visits); Behavioural Treatments for Sleep Problems; Care Co-ordination (the management of a child's needs across the entire care continuum); Addressing Problem Behaviours; Designing Educational Programs; Multicultural Challenges (best practices to serve the needs of mirity populations); Life Planning (legal, financial, and quality-of-life issues). Parents and professionals who previously had to piece together information about DS-ASD from sources about each separate condition can w rely on this groundbreaking book to understand and navigate the complexities and challenges of DS-ASD.
- Author BiographyMargaret Froehlke is a Registered Licensed Nurse in Colorado and the mother of four children, one of whom has both Down syndrome and autism spectrum disorder (DS-ASD). Ms. Froehlke worked as Executive Director of the Denver Adult Down Syndrome Clinic, and is now on staff with Adam's Camp, a provider of therapeutic and adventure programs for kids and adults with developmental disabilities, based in Denver. Ms. Froehlke is also the author of Mass, A Guide for Visual Learners, a book designed to assist persons with ASD in attending the Catholic Mass. Robin Zaborek is a proud mother of four children, including an adult son with Down syndrome and a teenage daughter with Down syndrome and autism (DS-ASD), Janet Kay, who passed away during the final stages of writing this book. Ms. Zaborek is a CDA (Child Development Associate) and CNA (Certified Nurses Assistant), and she is a long-time advocate for people with developmental disabilities. She is a co-founder of the Down Syndrome-Autism Connection, whose mission is to provide support and education to families and professionals impacted by DS-ASD.
- PublisherWoodbine House Inc.,U.S.
- Date of Publication04/02/2013
- SubjectPregnancy & Parenting
- Place of PublicationBethesda, MD
- Country of PublicationUnited States
- ImprintWoodbine House Inc.,U.S.
- Content Noteblack & white illustrations
- Weight322 g
- Width180 mm
- Height255 mm
- Spine15 mm
- Edited byMargaret R. N. Froehlke,Robin Zaborek
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