Extreme Parenting: Parenting Your Child with a Chronic Illness by Sharon Dempsey (Paperback, 2008)

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'[A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.'
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